Coming back to Health, coming back to Life

Two
months of fear, worry, depression, anxiety and unimaginable stress. These most
difficult days pulled family up together, moral support and prayers made it
possible to surpass such a weakening situation. I think that we shall never pay
this much attention to our health if we weren't push this much.
3rd week
of April - we're getting sick. Thought it was just a normal stomach flu which
goes away after few days. mine stayed for 2 weeks. 2 weeks of feeling bloated.
the whole abdomen - stomach and intestines felt all swollen which made it
difficult to eat, walk, sleep and work. having "gifted" (dunno if its
good or bad) with a high tolerance towards pain, i continued working. i didn't
know how i survived but i did. after 2 weeks, the pain disappeared.
4th week of
April - husband got sick exactly with the same symptoms at the beginning.
1st May -
'twas a holiday but we went to work. a week passed but he wasn't getting any
better.
2nd week
of May - condition got worse, stopped going to work, trying to recover at
home.
20th May
- went for a medical check but doctor sent us home to get things. he had to be
admitted for 10 days.
Difficult
days had begun...
Blood tests
almost everyday, IV, and the agony of waiting for each result enveloped us all
during all these times. Each test result coming up one by one doesn't bring any
hope or good news instead just added up to our worries. Fear was getting bigger
day by day.
Enlarged
liver and spleen were the first 2 heavy burdens we had to deal with. Different
tests with different instruments followed. X-ray, Ultrasound, ERCP and lots of
blood samples.
Erosion
in the stomach came next. No treatment given yet except for IV. Treatment
cannot start until they find out what had caused his situation. Days were
prolonging and no diagnosis was given yet. The scariest thing is to hear
doctors say: "They cannot find the cause and they too are
puzzled".
10 days
lasted to 14 days.
3rd June
- was released with a preliminary diagnosis of:-
viral infections: NEGATIVE (thank goodness)-
cancerous cells: NEGATIVE (thank God of course)- Primary
Sclerosing Cholongitis
It wasn't
final. He was given a directive to proceed to another hospital after few days
of observation. He was subjected for tomography to rule-out the suspicion of
mechanical failure of organs.
He stayed
home under observation and after 10 days, condition had gotten worse
again. We went
to the hospital (another one) to see the specialist. He was examined and
results were compared to his previous. The doctor agreed with the preliminary
diagnosis.
That was
the saddest ever day!
Primary
Sclerosing Cholongitis: (PSC) is an uncommon condition affecting the
bile ducts and liverThe cause
is not clear. It can sometimes run in families.At
present there is no specific treatment which either cures or slows the
progression of PSC.
Here is an article about PSC: http://www.onhealth.com/primary_sclerosing_cholangitis/article.htm
I started
dying ... it was not in any case easy to bear such a news.
We
started bracing up for the worse. He definitely has to be hospitalized one more
time. With high hopes that he was misdiagnosed we decided to put him
to the best hospital with the best doctors.
19th June
- was admitted after 5 hours of beaurocracy - too many documents and papers to
fill in.
Started
running tests again. Blood, urine, stool, ECG, X-ray, ERCP, CT
scan, duoudenal probing, liver enzyme tests which terms I don't know how to
explain.
He still
keeps on losing weight, looking pale, weak, arm scarred from IV's and blood
extraction.
Everyday
was a worrisome day. Not even knowing what to worry exactly about.
We tried
doing everything, anything that could save him. Best medical practitioners,
best hospital, Prayers, mass intentions, candle and other offerings. His mom
thought of giving him her liver in case of a need for transplantation (Oh, God
forbid). I did too but simply it'd be impossible from me.
I was
going to work the whole time, I worry more thinking at home than getting myself
tired at work. It wasn't as easy as I thought because everytime colleagues and
students see me, they're asking about him. And for me every moment was a
reminder of the whole thing that is going on.
When I
get home, I had to answer messages from family overseas. They too have been
under a lot of worry. Talk about updates with my mom-in-law who was going to
the hospital almost everyday to provide needs. Communicate with Sham and
console him. Then relax myself and gain energy for the following day.
27th June
was his 36th birthday. Unfortunately he had to spend it in the hospital. We
didn't think about worry much at least for a day. Earlier that day, he was told
what they saw in one of the tests.
Cholesterol
in the Gallbladder. And with this thought alone, ruling out gallstones or
cancer, we were all happy enough on his birthday. He was relieved and really
was happy on that day.
I was
happy but was still not relieved. I was still worried about the other results. After
all those sufferings, worsening condition, preliminary diagnosis, tests and
confusion from the doctors themselves, it couldn't be just cholesterol.
30th June
final diagnosis:
Intoxication
of the liver (due to food supplement/vitamins for men)Cholesterol
in the gallbladder (abusive diet)Gastritis
(stress and bad eating habit)
In
addition to all these, the doctor mentioned stress as one cause that made all
things complicated and added dense of effect to the patient.
MIRACLES
HAPPEN ... after all what he's been through, these are already the least scary
result we received. We are very grateful!
Further
Results:CT scan:
mechanical failure of organs - NEGATIVEGallstones:
NEGATIVEViral
infections: NEGATIVEParasitic
infection: NEGATIVEGallbladder
& pancreatic cancer: NEGATIVEBile duct
obstruction: NEGATIVEBiliary
ducts dilation: NEGATIVESpleen: NORMAL Liver: a
little enlarged
We are
still waiting for some liver enzyme test result. It is to see how much the
intoxication has damaged the liver. We continue to hope and pray that nothing
bad is with it.
4th July
HOME SWEET HOME ... :)
He is now
recovering ... gradually but happily.
Lessons
Learned:
1. Take
care of your body and health, we only have one. You might feel that you are
fine but mind your internal organs, they might be exausted. One day they'll
just give up on you if you don't help them. Be kind to yourself.
Remember,
it's not only those who have bad habits like drinking and smoking are at risk. My
husband doesn't smoke neither drink but still got problems we didn't expect.
2. If you
are tired, take a rest! Do not cure fatigue with vitamins that promise to give
you energy, energy drinks and coffee. Take a good rest and do not compensate it
with anything.
3. Watch
your habits. You don't notice they're bad until they backfire.
4. If you
have a hobby, especially if you are passionate about it, never stop doing it
under whatever circumstances - that's the only treat you can give yourself
after a hardwork.
5. Work
only for needs and pleasure. Do not let your job swallow you and your good
life. Watch out for signs of dissatisfaction and fatigue. That's how work
becomes a constant stress. And this stress develops until it starts affecting
you daily life. Once felt - do not struggle, do not fight it. Just stop what
you are doing and find peace to your soul before it starts attacking you
health.
Sometimes
we are too busy to notice such occurences in our daily life. First we try to
ignore them, later we don't notice them piling up and later we accept them as a
norm and try to live with them; which is a very big mistake! Do not let your
healthy self defeated !!! Stay healthy, keep doing only what makes you happy
and be grateful to life! :)
Wishes of
good health to everyone. Thanks for reading.
I just noticed that you began following my blog (thank you!) and I wanted to pay a visit. Having read the story of your husband's illness moved me tremendously and I am hopeful he will have a full recovery. It's a hard way to learn the lessons you shared, but valuable lessons they are. This particularly resonated with me because a little over a year ago I went through a prolonged diagnosis (which ended up all right in the end) but motivated me to retire from my work. The stress stopped -- and so did much of the illness; the rest is manageable. Yes, lack of stress, good rest, careful habits and never giving up what you love are indeed great things to remember. All the best to you.
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