Sunday, September 28, 2014

Coming back to Health, coming back to Life


Two months of fear, worry, depression, anxiety and unimaginable stress. These most difficult days pulled family up together, moral support and prayers made it possible to surpass such a weakening situation. I think that we shall never pay this much attention to our health if we weren't push this much. 
3rd week of April - we're getting sick. Thought it was just a normal stomach flu which goes away after few days. mine stayed for 2 weeks. 2 weeks of feeling bloated. the whole abdomen - stomach and intestines felt all swollen which made it difficult to eat, walk, sleep and work. having "gifted" (dunno if its good or bad) with a high tolerance towards pain, i continued working. i didn't know how i survived but i did. after 2 weeks, the pain disappeared. 
4th week of April - husband got sick exactly with the same symptoms at the beginning. 
1st May - 'twas a holiday but we went to work. a week passed but he wasn't getting any better. 
2nd week of May - condition got worse, stopped going to work, trying to recover at home. 
20th May - went for a medical check but doctor sent us home to get things. he had to be admitted for 10 days. 
Difficult days had begun...
Blood tests almost everyday, IV, and the agony of waiting for each result enveloped us all during all these times. Each test result coming up one by one doesn't bring any hope or good news instead just added up to our worries. Fear was getting bigger day by day. 
Enlarged liver and spleen were the first 2 heavy burdens we had to deal with. Different tests with different instruments followed. X-ray, Ultrasound, ERCP and lots of blood samples.
Erosion in the stomach came next. No treatment given yet except for IV. Treatment cannot start until they find out what had caused his situation. Days were prolonging and no diagnosis was given yet. The scariest thing is to hear doctors say: "They cannot find the cause and they too are puzzled". 
10 days lasted to 14 days.
3rd June -  was released with a preliminary diagnosis of:-  viral infections: NEGATIVE (thank goodness)-  cancerous cells: NEGATIVE (thank God of course)-  Primary Sclerosing Cholongitis   
It wasn't final. He was given a directive to proceed to another hospital after few days of observation. He was subjected for tomography to rule-out the suspicion of mechanical failure of organs.
He stayed home under observation and after 10 days, condition had gotten worse again. We went to the hospital (another one) to see the specialist. He was examined and results were compared to his previous. The doctor agreed with the preliminary diagnosis.
That was the saddest ever day! 
Primary Sclerosing Cholongitis:   (PSC) is an uncommon condition affecting the bile ducts and liverThe cause is not clear. It can sometimes run in families.At present there is no specific treatment which either cures or slows the progression of PSC.
Here is an article about PSC: http://www.onhealth.com/primary_sclerosing_cholangitis/article.htm
I started dying ... it was not in any case easy to bear such a news. 
We started bracing up for the worse. He definitely has to be hospitalized one more time. With high hopes that he was misdiagnosed we decided to put him to the best hospital with the best doctors. 
19th June - was admitted after 5 hours of beaurocracy - too many documents and papers to fill in. 
Started running tests again. Blood, urine, stool, ECG, X-ray, ERCP, CT scan, duoudenal probing, liver enzyme tests which terms I don't know how to explain.
He still keeps on losing weight, looking pale, weak, arm scarred from IV's and blood extraction.
Everyday was a worrisome day. Not even knowing what to worry exactly about.
We tried doing everything, anything that could save him. Best medical practitioners, best hospital, Prayers, mass intentions, candle and other offerings. His mom thought of giving him her liver in case of a need for transplantation (Oh, God forbid). I did too but simply it'd be impossible from me. 
I was going to work the whole time, I worry more thinking at home than getting myself tired at work. It wasn't as easy as I thought because everytime colleagues and students see me, they're asking about him. And for me every moment was a reminder of the whole thing that is going on. 
When I get home, I had to answer messages from family overseas. They too have been under a lot of worry. Talk about updates with my mom-in-law who was going to the hospital almost everyday to provide needs.  Communicate with Sham and console him. Then relax myself and gain energy for the following day.
27th June was his 36th birthday. Unfortunately he had to spend it in the hospital. We didn't think about worry much at least for a day. Earlier that day, he was told what they saw in one of the tests.
Cholesterol in the Gallbladder. And with this thought alone, ruling out gallstones or cancer, we were all happy enough on his birthday. He was relieved and really was happy on that day.
I was happy but was still not relieved. I was still worried about the other results. After all those sufferings, worsening condition, preliminary diagnosis, tests and confusion from the doctors themselves, it couldn't be just cholesterol. 
30th June final diagnosis:
Intoxication of the liver (due to food supplement/vitamins for men)Cholesterol in the gallbladder (abusive diet)Gastritis (stress and bad eating habit)
In addition to all these, the doctor mentioned stress as one cause that made all things complicated and added dense of effect to the patient.
MIRACLES HAPPEN ... after all what he's been through, these are already the least scary result we received. We are very grateful!
Further Results:CT scan: mechanical failure of organs - NEGATIVEGallstones: NEGATIVEViral infections: NEGATIVEParasitic infection: NEGATIVEGallbladder & pancreatic cancer: NEGATIVEBile duct obstruction: NEGATIVEBiliary ducts dilation: NEGATIVESpleen: NORMAL Liver: a little enlarged
We are still waiting for some liver enzyme test result. It is to see how much the intoxication has damaged the liver. We continue to hope and pray that nothing bad is with it. 
4th July HOME SWEET HOME ... :)
He is now recovering ... gradually but happily. 
Lessons Learned:
1. Take care of your body and health, we only have one. You might feel that you are fine but mind your internal organs, they might be exausted. One day they'll just give up on you if you don't help them. Be kind to yourself.
Remember, it's not only those who have bad habits like drinking and smoking are at risk. My husband doesn't smoke neither drink but still got problems we didn't expect.
2. If you are tired, take a rest! Do not cure fatigue with vitamins that promise to give you energy, energy drinks and coffee. Take a good rest and do not compensate it with anything. 
3. Watch your habits. You don't notice they're bad until they backfire. 
4. If you have a hobby, especially if you are passionate about it, never stop doing it under whatever circumstances - that's the only treat you can give yourself after a hardwork.
5. Work only for needs and pleasure. Do not let your job swallow you and your good life. Watch out for signs of dissatisfaction and fatigue. That's how work becomes a constant stress. And this stress develops until it starts affecting you daily life. Once felt - do not struggle, do not fight it. Just stop what you are doing and find peace to your soul before it starts attacking you health.
Sometimes we are too busy to notice such occurences in our daily life. First we try to ignore them, later we don't notice them piling up and later we accept them as a norm and try to live with them; which is a very big mistake! Do not let your healthy self defeated !!! Stay healthy, keep doing only what makes you happy and be grateful to life! :)
Wishes of good health to everyone. Thanks for reading.


1 comment:

  1. I just noticed that you began following my blog (thank you!) and I wanted to pay a visit. Having read the story of your husband's illness moved me tremendously and I am hopeful he will have a full recovery. It's a hard way to learn the lessons you shared, but valuable lessons they are. This particularly resonated with me because a little over a year ago I went through a prolonged diagnosis (which ended up all right in the end) but motivated me to retire from my work. The stress stopped -- and so did much of the illness; the rest is manageable. Yes, lack of stress, good rest, careful habits and never giving up what you love are indeed great things to remember. All the best to you.

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